Healthcare
Epidermolysis bullosa: Lab holding Vyjuvek has not submitted funding request to Portuguese State
The Ministry of Health and Infarmed state that the Vyjuvek gel, which aids wound healing for patients with epidermolysis bullosa, is not available in Portugal because the manufacturing laboratory has not yet submitted a formal funding application. While authorities and the manufacturer met last week to clarify submission procedures, the process remains stalled, meaning the medication cannot be commercialized or publicly funded at this time.
Why it mattersIf you or a family member are among the estimated 150 patients in Portugal with this rare condition, this confirms that the delay in accessing this treatment is currently due to the manufacturer's inaction on the formal funding application, rather than a refusal by the state to review it.
